I saw an unfamiliar medical condition

Context
I was reading an e-mail from Help a Reporter Out (HARO) today and it referred to a condition known as gluteal amnesia. As mentioned previously, the rules of HARO don't allow me to quote the actual message here. Since I had never heard of gluteal amnesia, I did a quick internet search for it. I saw it mentioned and defined on several sites, but when I sought more information on either WebMD and PubMed, the term was not found.

Commentary
I can't tell you what gluteal amnesia is, because once I found it wasn't mentioned on the two internet sources I consider most authoritative for medical information I was no longer interested in the condition itself. Instead, I came to wonder why a great many people outside the medical establishment wanted to talk so much about it.

I've come up with three possible reasons:

1) Gluteal amnesia doesn't really exist at all and is just a scam started to convince people they have an exotic ailment.

2) Gluteal amnesia is a very real medical problem, but health professionals call it something else.

3) What is labeled gluteal amnesia is a set of symptoms that could point to a variety of other widely recognized medical conditions.

Whichever of these three reasons explains the discrepancy in the discussion of gluteal amnesia (Could we really just be talking about your butt falling asleep?), it must drive physicians up the wall. It may also illustrate, in part, why doctors sometimes hate it when patients get medical information from the web. Think about it: a general practitioner has to keep up with all manner of real medical problems, and then people come in complaining of a problem that doesn't exist. Or does exist, but is called by another name or indicates another type of problem.

It doesn't help in the slightest that there are probably some people who believe in a fourth potential reason for the relative silence about gluteal amnesia: it's a very real, very serious medical condition that the medical establishment doesn't want us to know about for some nefarious reason. So now we have skilled professionals (and, in my experience, generally nice people) being told, "I don't trust what you say because the internet, (where nobody knows you're a dog), says different."

For the record, my doctor often encourages me to look up information on my medical problems on the internet, but that's after she tells me what they are. And it's possible she does that because I'm a librarian and I let her be a doctor.

What did you see today?